Myalgic encephalomyelitis (ME) and chronic fatigue syndrome (CFS) are serious, debilitating conditions that affect millions of people in the United States and around the world. ME/CFS can cause significant impairment and disability. Despite substantial efforts by researchers to better understand ME/CFS, there is no known cause or effective treatment. Diagnosing the disease remains a challenge, and patients often struggle with their illness for years before an identification is made. Some health care providers have been ...
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Myalgic encephalomyelitis (ME) and chronic fatigue syndrome (CFS) are serious, debilitating conditions that affect millions of people in the United States and around the world. ME/CFS can cause significant impairment and disability. Despite substantial efforts by researchers to better understand ME/CFS, there is no known cause or effective treatment. Diagnosing the disease remains a challenge, and patients often struggle with their illness for years before an identification is made. Some health care providers have been skeptical about the serious physiological - rather than psychological - nature of the illness. Once diagnosed, patients often complain of receiving hostility from their health care provider as well as being subjected to treatment strategies that exacerbate their symptoms. Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome proposes new diagnostic clinical criteria for ME/CFS and a new term for the illness - systemic exertion intolerance disease(SEID). According to this report, the term myalgic encephalomyelitis does not accurately describe this illness, and the term chronic fatigue syndrome can result in trivialization and stigmatization for patients afflicted with this illness. Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome stresses that SEID is a medical - not a psychiatric or psychological - illness. This report lists the major symptoms of SEID and recommends a diagnostic process.One of the report's most important conclusions is that a thorough history, physical examination, and targeted work-up are necessary and often sufficient for diagnosis. The new criteria will allow a large percentage of undiagnosed patients to receive an accurate diagnosis and appropriate care. Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome will be a valuable resource to promote the prompt diagnosis of patients with this complex, multisystem, and often devastating disorder; enhance public understanding; and provide a firm foundation for future improvements in diagnosis and treatment. Table of Contents Front Matter Summary 1 Introduction 2 Background 3 Current Case Definitions and Diagnostic Criteria, Terminology, and Symptom Constructs and Clusters 4 Review of the Evidence on Major ME/CFS Symptoms and Manifestations 5 Review of the Evidence on Other ME/CFS Symptoms and Manifestations 6 Pediatric ME/CFS 7 Recommendations 8 Dissemination Strategy Appendix A: Public Session Agendas Appendix B: GRADE Grid Template Appendix C: Disability in ME/CFS Appendix D: Questionnaires and Tools That May Be Useful for Assessing ME/CFS Symptoms Appendix E: Biographical Sketches of Committee Members, Consultants, and Staff
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Add this copy of Beyond Myalgic Encephalomyelitis/Chronic Fatigue to cart. $73.85, good condition, Sold by Bonita rated 4.0 out of 5 stars, ships from Newport Coast, CA, UNITED STATES, published 2015 by National Academies Press.
I have not read the entire book. However, I have read certain passages of it; and for one of the few times in 36 years, I find them to be accurate. The principle difficulty is the continued use of "Chronic Fatigue Syndrome", a surreal name that was invented by the CDC//AMA to obscure the true history and nature of ME. With proper training and technique, ME is NOT difficult to diagnose. Also, the disabling episodes of pain that hallmark it can be ameliorated with medication (although it's twin symptom of prostrating exhaustion can not, to my knowledge, except by absolute rest). Again, in it's place was substituted the deadly and criminal one of hypochondria; ignoring the hard science of every modern country of the world (excepting the UK, where psychiatrists first introduced the inane diagnosis of "mass hysteria"). So, read it, if you can, but beware of the lies that cling within its pages.