This sourcebook has been created for patients who have decided to make education and Internet-based research an integral part of the treatment process. Although it gives information useful to doctors, caregivers and other health professionals, it also tells patients where and how to look for information covering virtually all topics related to scleroderma, from the essentials to the most advanced areas of research. The title of this book includes the word official. This reflects the fact that the sourcebook draws from ...
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This sourcebook has been created for patients who have decided to make education and Internet-based research an integral part of the treatment process. Although it gives information useful to doctors, caregivers and other health professionals, it also tells patients where and how to look for information covering virtually all topics related to scleroderma, from the essentials to the most advanced areas of research. The title of this book includes the word official. This reflects the fact that the sourcebook draws from public, academic, government, and peer-reviewed research. Selected readings from various agencies are reproduced to give you some of the latest official information available to date on scleroderma. Following an introductory chapter, the sourcebook is organized into three parts. PART I: THE ESSENTIALS; Chapter 1. The Essentials on Scleroderma: Guidelines; Chapter 2. Seeking Guidance; Chapter 3. Clinical Trials and Scleroderma; PART II: ADDITIONAL RESOURCES AND ADVANCED MATERIAL; Chapter 4. Studies on Scleroderma; Chapter 5. Patents on Scleroderma; Chapter 6. Books on Scleroderma; Chapter 7. Multimedia on Scleroderma; Chapter 8. Periodicals and News on Scleroderma; Chapter 9. Physician Guidelines and Databases; Chapter 10. Dissertations on Scleroderma; PART III. APPENDICES; Appendix A. Researching Your Medications; Appendix B. Researching Alternative Medicine; Appendix C. Researching Nutrition; Appendix D. Finding Medical Libraries; Appendix E. Your Rights and Insurance; ONLINE GLOSSARIES; SCLERODERMA GLOSSARY; INDEX. Related topics include: Familial Progressive Systemic Sclerosis, Morphea, Progressive systemic sclerosis, Systemic Sclerosis.
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